Webinar: “What’s Going to Happen to ME When you Die?”
- Catherine Bailey
- May 30
- 2 min read
📅 Date: Thursday 24 September 2026 ⏰ Time: 8:15 PM - 9:15 PM GMT 🎟️ Ticket Price: FREE
Overview
David Gerry joins Andrew Keeping, CEO of FASD Awareness, to discuss creating an FASD-informed succession plan for families. This webinar addresses the concern of parents and caregivers about their child's future when they are no longer present. It will explore how to transform years of experience and insights into structured, lifelong support for children with Fetal Alcohol Spectrum Disorder (FASD). Drawing from his experience in Canada and Ireland, David Gerry will share practical ideas, common pitfalls, and planning tools to help families move from anxiety to action.
Who Is This Webinar For?
This session is particularly relevant for:
Parents, foster carers, kinship carers, and adoptive parents of individuals with FASD
Siblings and extended family members involved in future care planning
Support workers, social workers, and keyworkers
Advocates, care coordinators, and disability service providers
Anyone interested in long-term planning and supported decision-making for individuals with FASD
No prior knowledge of legal or financial planning is necessary; the focus is on practical, FASD-informed approaches that families can tailor to their own situations.
What You’ll Learn
By the end of this webinar, participants will:
Understand why traditional “transition” and succession planning often fails individuals with FASD.
Explore the lifelong, changing support needs of adults with FASD.
Learn how to capture and convey a family’s lived knowledge and wisdom in ways that others can utilize.
Consider key components of an FASD-informed succession plan, including:
Daily living and routines
Communication and relationships
Health, mental health, and safety
Money management and vulnerability to exploitation
Housing, community inclusion, and meaningful activity
Reflect on how to involve the person with FASD in planning, at a pace and manner that suits them.
Hear examples of tools and documents families can create (e.g., “About Me” guides, crisis plans, circles of support)
Gain ideas for collaborating with professionals, services, and future supporters to build a sustainable network, rather than just a single replacement carer.
Speaker Biography
David Gerry, BSc (Biology & Psychology)Parent, Advocate, Trainer, Co-founder of ENDpae (Ireland). David Gerry began his intensive “home study” in FASD when he and his wife became foster parents to two children with FASD. In 2000, he co-founded The FASD Community Circle – Victoria, a charity that developed programs and services for those with FASD. The Circle established:
The first children’s multidisciplinary FASD assessment and diagnostic clinic on Vancouver Island
A similar clinic for at-risk women
David has served as an expert advisor to the Integrated Court in Victoria, BC, and for 13 years was an advisor to a residential program for women with FASD, addictions, and mental health needs. Since moving to Ireland, David has co-founded the Irish FASD advocacy group ENDpae (endpae.ie/who-we-are). He has published five articles in four Irish education journals and, over the past five years, has delivered around 45 workshops and presented at FASD conferences in Manchester and Madrid. His work combines lived experience, service development, and training to enhance understanding and support for individuals with FASD and their families.
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