I started a parenting course a couple of weeks ago, one that is run by Social Services in my local area and I've found it really interesting. It doesn't take into account any form of disability or mental health issues but I'm sticking with it, as I've made some nice connections there. However, a Social Worker made a statment towards to end of a session last week and It's stuck with me and I've been almost brewing on it. She said that parenting an, "adoptive, tramatised or disabled child is a thankless task." At the time I completly agreed, we'd had a bad challenging day at home and then I slept and woke-up and I got annoyed almost.
My birth son well I get thanked every day, just seeing his little face light up when I enter the room or help him stand makes my heart warm so it got me thinking this week when does my adopted, tramatised and disabled child thank me? My first thought was why does he need to thank me, some would say that we gave him a home and a good life and therefore he should be thankful but I do not see it like that at all. We chose to have him, we literaly chose him on paper and got him. We should be the thankful ones. Then I couldn't help but think, and it does take a lot of thinking sometimes when you've had a day and night from hell for quite a while that of course he thanks me. Not the same as my birth son, of course not, his been brought up so far without any trauma and a stable loving family home but he does it in his own way. I turned-up at school today and got pulled in a different side door from his classroom because he was having a meltdown. The fear I saw in him when I came round the corner broke my heart but the sobs and the tears of me being there thanked me – which to most people would make no sense. However, I know or at least that I'm talking some sense to other FASD parents out there. The gratitude I get when the meltdowns end or the memories come back make my job of being a parent worth while. Even though some days, weeks and even months I don't feel this way; I feel like the world is against me and that my son hates me but actually I know that's face value and actually thats just the face of his disability.
This week we attended our mental health appointment for him and got told that he needs to be diagnosed as ASD aswell as FASD. I've also suspected as much considering how similar the characterisitcs but then I got really upset that he'd been labelled again. To me what seems an easy label for professionals because then actually they can go on that diagnosis alone and not worry about FASD or doing any research on it! I fight locally to raise awareness and obviously I write these pieces so that I can hopefully reach some one somewhere to either help the or raise awareness even if it just reaches one person somewhere on facebook or twitter it's done its job – but actually I almost feel like I've slightly lost my fight to raise awareness because it's so much easier for him to be ASD aswell that his FASD will always be overlooked. However, this will not stop me! I will not stop writing and telling people about our lives, our adventures or our difficulties and I so hope that someone somewhere reads this and feels the same.
Kiss you little FASD dudes and dudettes good night, put your feet up and enjoy your life!